Thursday, December 02, 2010

The Future

"From your child with special needs: "I do not spend my time living in the future as you do. I know you worry so much about tomorrow and what will become of me. I can only handle one day, one week at a time. If I could only reach you when you worry and pull you back to the moment here with me, I would tell you that I love you and to please take it one day at a time." HOPELights


Ain't it the truth.  I DO think a LOT about what's going to happen to Sal in the future.  Where she will live, work, what will happen when I die.  I pray every night that I live just one day longer than she. 

Sal, of course, is undaunted by the future.  She is planning on buying the house next to us and having two boys: Matt and Max.  She'll "get the father later".  :-)   It's humorous but yet sad too.  I don't think she'll be able to care for herself much less care for a child.  Of course I don't say this to her or discuss anything that serious with her.

Jack and I are starting an Autism Acceptance Book.  Jack is being MUCH more obnoxious to Sal and though I realize that this is very typical brother behaviour - I do want to make sure he has the facts about what goes on with Sal.

So on to Snowshoeing.  Yes, Sal has signed up for Snowshoeing with the Park District.  Her first practice was last night.  She had a good time AND she can do it!  I figured it'd be a good match for her.  She doesn't seem to be bothered by the cold AND she can walk - so I thought what the heck.  :-)   And in true Sal fashion she has embraced it.  ;-) 

Jack took a beach ball along and played out on the soccer field the whole hour.  As I watched him I had to think about how I get upset sometimes because he can't sit still but if he did - he probably wouldn't be a child that liked to go out in the freezing cold and play.  I didn't and I was a child that could sit still - still can.  :-)  So I had to be thankful that Jack was Jack. 

I think God or whatever makes things like that on purpose because Jack was on my list BIG time this week.  He threw a huge hissy about not having a 2010 calendar of his own and talked to me like I was his hired help.  When I walked away and refused to answer his pleading for help he changed his tune and said he was sorry but we still had a discussion about how *we* act in this family and what was and was not acceptable.  He needs reminding constantly.  ;-)  He's SO dramatic.  Everything is SUCH a big deal - that is unless it doesn't concern him - then it is nothing.  Kind a Republican point of view.  jk   :-)  

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