I forget. No, I don't forget - how could I forget - but I seem to go on auto-pilot and take too much stuff at face value. After some investigation last night I have a new understanding of Sal's toilet habits. The new info is what STARTS the problem - and that is neurologically, her muscles have problems with elimination - which in turn makes a painful experience in the bathroom which THEN starts the whole cycle. Dr never talked about the BRAIN part. Soooooooooo, taking her off the meds when "things" were working was BAD. So we have a pretty big problem to fix. At least I know once we get this last episode over with we need to ALWAYS give the meds. It's not a question of not wanting to go with her - at first - it's the brain. And I guess the thing that ticks me off is that I should have realized this before. Sal is the most ALL-AROUND eater I know. She loves vegetables, she doesn't eat THAT much junk, really - not like the boy -It always puzzled me why this kept happening to her. So NOW I have the answer. That going back in time stuff would be WONDERFUL, huh? ;-)
So little Miss Sal is home with Daddy again. Talking to Gma and Gpa this morning Gpa told me that he was going to call DCFS because he had heard that I was "always ruining lives" ;-) That Jack provides more entertainment for my family. They had had heard from Jackie who really enjoyed the basketball game. (Sal's)
Sal plays tomorrow in a tourney at "insane o'clock" and I'm hoping she can participate in it. It's the starting of the Spec Olympics and the team who does well here then moves up and I'd like her to be part of that. Plus, when one is missing the others are anxious about it - even if that one doesn't do anything but "screen". :-) Not to mention that the physical activity will help our whole problem also.
One thing that was recommended to me by one of my Autism moms was to start the day with something warm with the meds. It seems to "wake up" the bowels. The only thing is - Sal doesn't care for warm things. Maybe it's time for us to have a "tea party" in the morning. :-)
I think even Jack would go for that - as long as it include waffles. That seems to be his staple food lately.
Jack Jack is doing well not being in the spotlight since Sal's sick. I got to see him in action on Tuesday - it was Muffins for Moms at school and after consuming our obligatory muffin the kids escorted us to their rooms. Jack immediately took up with M (who is similar to Sal) and I got to see how well he treats M. I was SO proud of him and very touched. Mrs G confided that Jack is the ring leader of the room and makes sure the M is seen to. We've had several kids who have helped Sal along the way: Q, B, and now D and it's so nice to see Jack respond in kind. I know much those kids mean to me that help Sal and I think M's mom feels that way about Jack. She knew him by name and chatted with him and M before she left. So when the boy lands in jail for doing some ridiculous thing I need to remind myself of the time that he was an asset to the community. :-)
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